Tomorrow we go back to Boston to find out if Jennifer’s surgery was a success. She will have her post op swallow study. It will have been almost 3 months since her surgery. (I think it will end up being 2 months and 3 weeks to be exact).
I’m nervously excited about it. She’s been on thin liquids since this post and is doing well. She does still cough but more as a protection than choking like before the surgery. And it is pretty infrequent. I really do think the study will still show some penetration into her windpipe but no real aspiration. I think when the penetration happens is when she coughs. This is a huge step for her as it means that her body has started to recognize that fluids are coming there and triggers her cough reflex. I *think* if this is all that’s happening then they will clear her to stay on thin liquids. As long as there is no aspiration.
Another exciting thing about going tomorrow is that I will get to meet one of my online friends that has a kiddo with aspiration too!! She found me through this blog and we have been emailing for a few months now. Her daughter is today going for a G tube placement and to be scoped to see if she also has a laryngeal cleft. Please say a prayer for them today.
