Laryngeal cleft message board up and running!!!

Laryngeal cleft message board up and running!!! November 8, 2009

Filed under: dysphagia, laryngeal cleft — Tracey @ 7:30 am

The new board is up and running!! Please visit and join it here. If your child has been diagnosed with a laryngeal cleft or is in the process of being worked up for one then this is the place for you!! We also welcome parents of children with dysphagia and aspiration with other causes.

Do you have a child with a laryngeal cleft?

If so, and you found me through this blog, feel free to contact me. There aren't a ton of us out there and I feel like no one should go through that journey alone. I am always willing to give some support etc. Or you can join my laryngeal cleft support group/message boards. The link for it is in the laryngeal cleft page. My contact info is laryngealcleftkids @ gmail . com (without the spaces!!)

Category Cloud

allergies asthma Benjamin cyclic vomiting syndrome dysphagia ear tubes food/recipes fructose intolerance heart defect Jennifer laryngeal cleft MSPI Samuel surgery tests

Jennifer in her PICU room right after her laryngeal cleft repair

Playing once she was transfered to a regular medical floor

Jennifer’s type 1 laryngeal cleft

Just after waking up from the laryngeal cleft repair

Doing the fructose intolerance test

Getting ready to do a swallow study to check for aspiration

Samuel having an echocardiogram (US of the heart)

Echocardiogram picture of Samuel’s heart

Jennifer showing off her IV

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At pediatricians office for big B & his lingering dry cough. Hope he does not have asthma like me. 3 weeks ago
Working at 11 tonite 1 month ago
Up late with my cyclic vomiter 1 month ago
Almost done with our day in boston. About to have a late lunch at chick fil a then on to the lego store. 2 months ago
Headed for the T to visit the public garden. 2 months ago
Appts over. Getting ready to give blood for the kids now. 2 months ago
Arrived safely at the childrens hospital just in time to get breakfast. First appt at 8. 2 months ago
Already on the road for 15 min & now have my tea. Beantown here we come. Appts for my daughter in am then some fun! 2 months ago
Just had to leave my eldest's soccer practice for work when a scrimage was about to start. :-( 2 months ago
Wishing, waiting, hoping..... 2 months ago

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Peridot Kids

My August babes and their issues: ear tubes, laryngeal cleft, MSPI, cyclic vomiting syndrome, asthma, allergies and a congenital heart defect. Join us for the ride of tears and joy.