We are back from the pediatrician with Samuel. We ended up having to go early and somewhat urgently. I gave him a breathing treatment at 12:45 that he asked for. He had asked for the one 4 hours previously too. That one had worked well though. At the end of the lunchtime one he said “I don’t feel better” and when I asked if he needed to go to the doctor early he said “No, I feel a little better.” So I put him down for a little rest time.
Not even 5 min later he was up calling for me. I went up there and he couldn’t finish a sentence but managed to get out that he needed “another treatment”. At this point I noticed that he was breathing pretty fast too. Called the pediatrician’s office and they said to bring him right down.
His O2 sat was good there and he was improved enough to speak in full sentences but he was still breathing pretty fast. The doc (luckily same one as saw him on Sat) said his lungs went from slightly wheezy to VERY wheezy and quite junky. Now my poor little guy has bronchitis along with this episode of viral induced asthma 😦 We are to continue his breathing treatments and have added an antibiotic and steroid. He expects in about 24 hours we should notice a huge difference. And he wants to recheck him on Friday.
Guess I should restart Jennifer on her singulair tonight before she heads down this road too!!
The title pretty much sums up our weekend with Sam. He has had a cold for over a week now and this weekend took a turn for the worse. He’s my one that gets every bug that comes through the poor little guy.
It started out innocently enough as just a cold with a cough. But his claritin and some Vick’s on his chest was managing it pretty well. Then Friday he came home from daycare feeling a bit warm. We were getting ready to go out to dinner as a family so I was going to change him out of his daycare clothes and I find this:
It was basically covering his whole trunk. My initial thought was Scarlet Fever but then a certain familiarity came to me with this rash. It is erythema multiforman. Or in English a severe form of hives that signals an allergic reaction. He had this once before at about 8 months when on an antibiotic. It lasted almost 3 days and was awful for him.
After speaking with the nurse at the pediatrician’s office he got a dose of benadryl and some tylenol. Looked much better after about 30 mins. But still had a temp of about 100.4. Nothing too major. They wanted to see him Sat am if he still had the fever.
Sat am he wakes covered in spots again and with a temp of 101. Off to the doctor we go. He looks him over and cannot find a reason for the fever. Then asks if he was one of my wheezy kids. I say yes, he had infantile asthma but has outgrown it as of last winter. Then he says that he feels bad telling me this but he is wheezing. Ahhhhhhhh! Back to breathing treatments we go:
Now, about the rash, before we knew what the source of the allergy was so we can avoid that antibiotic in the future. This time…….not so easy. The doc isn’t sure if it’s the cough medicine we gave him a dose of, the Vick’s we were putting on him or the cold virus itself. Only time will tell I guess.
The rash lasted 1 1/2 days this time, was gone by Sunday morning and was incredibly itchy for him. He got lots of benadryl and unfortunately turns out to be one of those kids that benadryl makes hyper….uggh! Then I thought we were done but Sunday afternoon he spikes a fever of 102 this time and is covered in regular hives. Not nearly as bad a reaction but still reacting again.
So we are off to the doctor again today to see why still a fever……….
Does the picture say it all? Yesterday was a HUGE day for us!!!
We actually went out to run some quick errands and so I didn’t bring anything for snack or to drink. Jennifer was just whining and whining that she was firsty! So, I stopped and got a juice and put some in a cup with a straw for her and for Sam. I figured I’d pinch the straw so that she would only get a little as that works ok for her. But, then I decided to see what she would do with it on her own. She did wonderful! Drank 6 oz of juice and only coughed once.
Later when we got home we tried again with this juice box. She was so excited! It was for sure a Kodak moment!!! No cough at all this time. She then drank thin oat milk for dinner. Again no cough.
Hopefully there is no silent aspiration accompanying this as that has been her big MO in the past too. We’ll watch close for the low grade fevers I blogged about a week or so ago and go from there. Next swallow study is in about 3 weeks.
Croup has invaded our house! Jen awoke with it last night around 1:25. It always sounds so scary. I cannot imagine what people thought before the age of modern medicine when croup’s description really got out there. My first thought each time my kids awaken with it is: oh gosh they cannot breath!! Then I really wake and remember it’s only croup. Outside we go and things improve dramatically.
Jen’s breathing sounds fine this morning but she is still doing the barking cough. Sam, who slept fine, awoke with the barking cough this morning too. Probably means we’ll be in for a rough night tonight.
So far Ben is spared. Shouldn’t be much longer though!!!!
I went to our local health food store the other day to get Jen some more yogurt and found that instead of just the usual rice based yogurt they now have a coconut based one. It was a bit more expensive (about 40 cents more) but I figured worth a try. Boy am I glad I gave it a chance.
It is wonderful!!! Much richer and creamier than we are used to in a nondairy, nonsoy yogurt. And the taste just cannot be beaten!!
Jen ate only half but I think that is because it is so much richer in taste than she is used to. I was happy to finish the other half which never would have happened with the rice based one!
We got a container of the chocolate ice cream too and she is loving that too!! Here is a link to the company who makes it’s webpage. They even have a coupon you can print for them!
After her surgery for the laryngeal cleft repair I were told to slowly start lessening the thickener in her liquids as that was the way to “reteach” her neuromuscular system how to swallow with her new anatomy. I was also told that it would be a long process that would be kind of like riding a bike where she would fall off multiple times but eventually get there. I was also told NOT to be frustrated.
Fast forward about 7 weeks and I’m frustrated :(. I know I’m not supposed to be and I’m really trying not to be but at first she was doing so well. About every 4-5 days I was able to reduce the amount of thickener in her liquid and she was doing wonderfully. No coughing and no signs of aspiration. We got from honey thick to nectar thick and then just below it like a breeze.
Then we hit a road block. She was 2 “steps” (meaning a step used in our thinning process) below nectar when she started out ok but then started coughing with drinking. So I went back up a step as directed. The coughing stopped but then I noticed that she would do this weird sounding swallow. I thought with her it was behavioral (hard to tell these things on a 3 year old!!) and so asked her why she was doing it. I got various answers from “choking” to “it’s fun”. So, I left the thickness as it was figuring it would be a good place for her body to work at. We’ve been there for about 1 1/2 weeks though.
Fast forward to the last few days and she’s acting a lot like she did before we started thickening. Cranky and chronically running a temp around 99.4-99.8. Not a huge temp I know but this used to be what I thought her “normal” temp was. It was always “oh Jen just runs a little warmer than the rest of us”. Then we started thickening and she stopped aspirating and low and behold she actually is human and her temp usually is closer to 98.4-98.6. So this really is a 1 degree rise for her. Nothing acute for infection but more indicative of chronic inflammation in her lungs. 😦
I’m guessing this may mean she’s fallen off the bike and I need to get around to realizing it. I’ll go a little thicker again and see where we go.