Monthly Archives: September 2009
BenjaminBenjamin is my baseball, basketball & soccer playing, video game loving, always running, try anything once, excellent reader and mathametician, blue eyed boy! He has always had trouble with his ears and has some viral induced asthma but is otherwise a healthy babe. On his second set of ear tubes, he also has had his tonsils & adenoids out. He's a happy albeit anxious at times 3rd grader. Oh and he is gonna play for the Red Sox when he grows up, or at least that's his plan!!
JenniferJennifer has always been my little work in progress. A 35 week fraternal twin she also plays soccer, basketball and baseball. She was hospitalized for the first time at 3 weeks old for a sepsis work up. She then had parotiditis at 5 weeks old. Suffering from dysphagia she ended up on honey thickened liquids until her laryngeal cleft was diagnosed at age 2 then repaired at age 3. Having GERD since birth she was taken off milk & soy at age 2 to attemp to control it. This was met with fairly good success. At age 3 after months of chronic diarrhea she was tested positive for fructose intolerance. Luckily she outgrew it within about 9 months. Around age 4 she began to complain of severe abdominal pain leading to her 3rd endoscopy. This led to the diagnosis of EE or esinophilic esophagitis. She was immediately tested for food allergies and was scratch test + for peas, potatoes & oats. After being taken off those she did well for only about 3 months after which a successful trial of oral steroid slurry was done. Just after being taken off this she began to complain of pain again. We are now in the process of taking out eggs, wheat, corn & beef in the hopes that these are triggers for her EE. She is always a work in progress. Despite all this she is fun loving & a diva! She loves her blanket & her stuffed animals. She loves sports (especially the Red Sox), Star Wars & all things girly. She will steal your heart in a minute and is my beautiful blue eyed 1st grade girl! Ultimately she is my hero.
SamuelSamuel is my 35 week hazel eyed twin boy. He is high energy, a handful and has had his own share of issues. He was hospitalized along with Jennifer at 3 weeks old for a fever and sepsis work up. He had fairly mild reflux that was treated with zantac and thickened formula. He outgrew it by about 9 months old. At 2 he was diagnosed with a Subaortic Membrane and was followed yearly by a Cardiologist. At age 4 he had to have open heart surgery to have the membrane removed. Around age 2 he was also diagnosed with cyclic vomiting syndrome or CVS along with a still unnamed "functional GI disorder". He loves anything Lego or Star Wars, likes to make noise and marches to the beat of his own drummer. He gives the best hugs and drives me the craziest of the three!! While he plays sports, he isn't one I see sticking with them. He does love his Red Sox like the other 3 though. He is a 1st grader along with Jennifer.
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Just after waking up from the laryngeal cleft repair
Playing once she was transfered to a regular medical floor
Doing the fructose intolerance test
Getting ready to do a swallow study to check for aspiration
Jennifer’s type 1 laryngeal cleft
Jennifer showing off her IV
Samuel having an echocardiogram (US of the heart)
Echocardiogram picture of Samuel’s heart
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