Monthly Archives: November 2009
Sam had his latest GI appt today for his cyclic vomiting syndrome (CVS). He has been episode free since before his surgery so there will be no dosage changes. This is fine with me as I don’t really want to go up on his periactin at all. In fact, I wanted to and asked to have a trial off of it.
Sam is a very wild child. Some would describe him as a “typical boy” but I’m not sure it isn’t more than that. He is just downright crazy!!! And more than anything he doesn’t sleep well. They really grilled me as to if this started when he started the periactin and if so why I hadn’t said anything before now. Well, first of all, he has been on the periactin so long that I really cannot remember what he was like before it and second of all I didn’t realize this was possibly one of the side effects.
But they didn’t agree with me and say that periactin is the #1 best med for CVS so we should continue on it. To pacify me it was agreed that we would give 1/2 the dose in the morning and 1/2 the dose in the evening and see if that had any change in his behavior or sleep habits. I’m not convinced……
Oh and he gained a pound and grew 1/4 inch in the month since he was seen last! Quite amazing since he was recovering from open heart surgery during that time!!!
Poor poor Ben!
First the cold, then the asthma diagnosis, then the seasonal flu and now bronchitis. Can it just stop already????
He had a dry hacking cough when he had the flu but it changed to this wet productive yucky cough. He then started complaining that when he coughed stuff was coming up from his lungs. Off to the pediatrician we went. Sure enough….wheezing and junky lungs. Pedi said he had a secondary bronchitis from having the flu. Breathing treatments and z-pack, recheck in 2 weeks.
G I V E H I M A B R E A K!!!!!!!
Poor Ben just got the asthma diagnosis after having a cold and coughing and coughing and coughing after it. Then the poor thing got the flu. The seasonal version, not the piggie (swine or H1N1) version. His highest temp was 101 not super high like with the H1N1 version and he was able to have periods of being up and around not stuck in bed for 4-5 days like those that I know that had swine.
But at the same time it kicked his butt much more than a cold will. It was easy to compare this to a cold since he was just getting over one a few weeks ago. He ended up missing 2 days of school this past week along with the day of no school for Veteran’s Day. Poor guy. But finally he’s feeling better. Hopefully he will catch a break now. He’s my one that really doesn’t get that sick often so keeping my fingers crossed for him.
The new board is up and running!! Please visit and join it here. If your child has been diagnosed with a laryngeal cleft or is in the process of being worked up for one then this is the place for you!! We also welcome parents of children with dysphagia and aspiration with other causes.
*******THIS BOARD IS NO LONGER UP***********