GI appt — Sam

Sam had his latest GI appt today for his cyclic vomiting syndrome (CVS).  He has been episode free since before his surgery so there will be no dosage changes.  This is fine with me as I don’t really want to go up on his periactin at all.  In fact, I wanted to and asked to have a trial off of it.

Sam is a very wild child.  Some would describe him as a “typical boy” but I’m not sure it isn’t more than that.  He is just downright crazy!!!  And more than anything he doesn’t sleep well.  They really grilled me as to if this started when he started the periactin and if so why I hadn’t said anything before now.  Well, first of all, he has been on the periactin so long that I really cannot remember what he was like before it and second of all I didn’t realize this was possibly one of the side effects. 

But they didn’t agree with me and say that periactin is the #1 best med for CVS so we should continue on it.  To pacify me it was agreed that we would give 1/2 the dose in the morning and 1/2 the dose in the evening and see if that had any change in his behavior  or sleep habits.  I’m not convinced……

Oh and he gained a pound and grew 1/4 inch in the month since he was seen last!  Quite amazing since he was recovering from open heart surgery during that time!!!

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About Tracey

I'm a 35 year old working mamma to 3 wonderful kiddos all with chronic health issues. View all posts by Tracey

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